Obtaining Stiripentol in the United States

Stiripentol is not an FDA approved drug. For the last several years, US citizens have been able to obtain stiripentol by ordering directly from Biocodex, France OR by ordering through Caligor Pharmacy, NY via the FDA’s Personal Importation Policy (PIP):

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Patient Registry

The goal of the registry is to collect data on as many patients as possible to make future research into specific symptoms, causes, and treatments easier to perform. By defining a large pool of affected individuals, future research can be performed more quickly and efficiently.

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Dravet Syndrome Won Compassionate Allowance Recognition

by the Social Security Administration Thursday December 6, 2012 Commissioner Astrue held an event at the Hart Senate Building at 10:00 a.m in Washington, DC to commemorate the milestone of reaching 200 Compassionate Allowances conditions.  Dravet Syndrome is one of the newest additions to this list of rare and debilitating conditions. This is a huge victory for people […]

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